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Pablo is 10 years old and lives with his parents and two younger brothers in north-west London. He attends a local school and goes swimming once a week at the local leisure centre.
Pablo was clinically diagnosed with infantile epilepsy at an early age and this has led to his severe developmental delay. He is unable to weight bear or walk without specialist equipment or assistance and because he has no speech, he communicates by making noises, eye pointing and touch. Pablo is also prone to frequent and repeated infections due to a blood disorder.
To enable Pablo and his family to go out more and access parks and …
Read all of Pablo’s Story
Amelia is 4 years old and lives in the centre of Exeter. She really loves arts and 
crafts, playing with her friends, horse riding and making people laugh.
In 2007 Amelia was diagnosed with Spinal Muscular Atrophy Type II. This neuromuscular condition affects people in different ways. Amelia was able to walk on her own until she was 18 months old, when her condition deteriorated and she now needs a wheelchair to move around independently.
In June 2009 Amelia was given her ‘Koala’ Permobil powered wheelchair, through the support of The Priority Trust. As soon as she received the chair, she worked out the controls and just got on with using …
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Hanna lives with her Mum and Dad in Chipping Ongar, Essex. Like other 6-year-old girls she loves to watch television, particularly CBeebies and DVDs such as Cinderella. Chloe also loves to be active and enjoys dancing and swimming.
Hanna was born with Cerebral Palsy and while she has some use of her hands and arms and can feed herself she cannot mobilise unaided unless she is crawling and this she can do for short distances.
She loves her mainstream school but as she has got older it has become more difficult for her to join in and feel involved with the other non-disabled children in her class. Hanna even told …
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Until recently, Amy was reliant on her manual wheelchair which she used to self-propel. However, Amy was not able to push herself over long distances and Amy and her family realised that her manual wheelchair would not allow her to enjoy the same level of independence as her peers when she started secondary school.
Amy’s family approached their local wheelchair service but they were unable to provide Amy with a powered indoor/outdoor wheelchair which would meet her needs.
For Amy to live an independent and active life she needed a wheelchair that met her social, educational and clinical needs. Through the support of The Priority Trust Amy has recently received an …
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It isn’t just powered wheelchairs which can make a massive difference to disabled children and their families. There are many types of mobility equipment that are not available through the NHS because of funding criteria which don’t consider all a child’s recreational needs. Simple pieces of equipment such as buggies can provide a childhood of fun and enjoyment by allowing children to enjoy normal family outings and everyday activities which most of us take for granted.
Codie is 6-year-old is a little girl, with Cerebral Palsy, who received a buggy in March 2009 through the fantastic support of the Priority Trust.
Codie’s Mum had applied to Whizz-Kidz for a buggy so …
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In March 2009 The Priority Trust made a grant of £30,596 to provide mobility equipment to seven children as requested by Newlife Foundation. As of the 15 September 2009 is that all equipment has been delivered. Priority and Newlife are working together to develop feedback on the impact the equipment is having on the children’s lives and this has been received from six of the seven families involved. More updates will follow as information is received, but here are the stories so far:
Imaan is 5 year old girl living in the west of England who has a diagnosis of global developmental delay, microcephaly and epilepsy. She has profound learning disabilities and is unable to communicate verbally. She has disturbed sleep …
Read all of Priority funds mobility equipment for 7 disabled children
Keira, a three-year old girl has recently been provided with her first powerchair, with the help of Priority. The SnapDragon powerchair, made with her specific requirements in mind will help her develop and be as independent as possible.
In September 2008, when the Occupational Therapist from Dragonmobility first met Keira at the request of Keira’s OT, she was shy, withdrawn and clinging. She had undergone a lot of medical interventions in her short life, and at the age of 2 had a natural tendency to cry and ask for cuddles when presented with anything new.
Keira has an undiagnosed neuromuscular condition which causes severe weakness, particularly in …
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We are delighted to announce that Priority has funded wheelchairs, buggies and trikes for another ten disabled children. This equipment will make a huge difference to these young people and give them the independence to develop and achieve their potential. The £25,750 grant means that Priority has made grants of £84,500 to fund mobility equipment for 20 children in our first year.
*All names have been changed to protect the individuals concerned
We will be following the progress these children as they receive their equipment and start to enjoy the freedom and change it will bringto their lives.
Once again Priority would like to thank all those who have generously supported our work as we look forward to funding more equipment going forward.
From the very start, the key to Priority’s success was developing a network of influential supporters to help us grow. We started with some of Kieran’s contacts and asked them to help us broaden our support.
To recognise this invaluable support and demonstrate the success we have had in attracting some of the best people in business we have formed the Priority Advisory Board. By joining, the members of this board are demonstrating their implicit support for the cause and the efforts of the trust and will help us to secure wider interest.
Priority is delighted to welcome David Blood, Max Burt, Glenn Earle, Stanley Fink, Stephen Holowesko, Peter Sutherland, John Thornton and Peter Weinberg as founder members of the Priority Advisory …
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The Priority Trust has made its first grant of £52,750 to fund mobility equipment for the nine physically disabled children listed below. Over the coming months the children and young people will receive equipment that specifically meets their everyday needs and will give them greater freedom and independence.
This is a huge milestone for Priority that we intend to build on, supporting more disabled children as effectively as we can. The grant of £52,750 has been made to Whizz-Kidz with whom we are working in partnership and all the funds will be spent on the mobility equipment.
*All names have been changed to protect the individuals concerned
We will be keeping in touch with Whizz-Kidz to track progress with the delivery of the …
Read all of Priority’s first grant funds nine disabled children
