Articles Tagged ‘Aspirations’
Pablo is 10 years old and lives with his parents and two younger brothers in north-west London. He attends a local school and goes swimming once a week at the local leisure centre.
Pablo was clinically diagnosed with infantile epilepsy at an early age and this has led to his severe developmental delay. He is unable to weight bear or walk without specialist equipment or assistance and because he has no speech, he communicates by making noises, eye pointing and touch. Pablo is also prone to frequent and repeated infections due to a blood disorder.
To enable Pablo and his family to go out more and access parks and …
Read all of Pablo’s Story
Amelia is 4 years old and lives in the centre of Exeter. She really loves arts and 
crafts, playing with her friends, horse riding and making people laugh.
In 2007 Amelia was diagnosed with Spinal Muscular Atrophy Type II. This neuromuscular condition affects people in different ways. Amelia was able to walk on her own until she was 18 months old, when her condition deteriorated and she now needs a wheelchair to move around independently.
In June 2009 Amelia was given her ‘Koala’ Permobil powered wheelchair, through the support of The Priority Trust. As soon as she received the chair, she worked out the controls and just got on with using …
Read all of Amelia’s Story
What a 24 hours! I headed from my flat last night to come to mums for the hospital appointment this morning. I left at 19.30 to let David help me shower and get dinner and then mum would just have to help me to bed, before we got up and headed to hospital and Beata arrived. Unfortunately Beata had to cover her other employer so good old mum stepped in to sort me until Chris starts Sunday.
So I headed towards the M11 with radio and heater on. 10 minutes later I realised I was cold and my hands were going into that weak claw they do in winter. With the new car, the accelerator is a little tougher but also …
Read all of What a nightmare journey!
I decided to do a typical style of update in terms of daily happenings but in an overarching manner. It has been known the car and my health have been under par for a while. The update of the moment is I am being admitted to the respiratory unit in hospital tomorrow to x-ray my bad lung and run some tests to see why I am still not clearing the infection. I am ok in myself but a little fed up with this and just want to be better, fingers crossed we get things moving tomorrow.
The broader area I want to discuss is easier with the back story. Those who have read my blogs and know me personally will know …
Read all of Knowing your limits
