Archive for August, 2010
This is an article I have written for an international medical journal. It acts as a reminder of why I keep this website flowing. It also shows the amazing support the JTSMA and Scope have given me and others. Furthermore being quite sensitive I do like a reminisce! Hope you like it.
Having read the article written by Patrick Moeschen I was inspired to contribute to the social model discussion and how this perspective also enhanced my story. My name is Martyn Sibley, I have type 2 Spinal Muscular Atrophy (SMA), I live in London and I am now 26 years old. Like Patrick, my upbringing was ‘normal’ and very much a can-do approach. Having used a wheelchair since 3 years …
Read all of My disability is not the problem
Anna has always wanted to be a schoolteacher: “I’ve just always known that’s what I want to do. My friends don’t know what they want to do, but for me it’s always been clear.” To get an idea about what this would involve, Anna has been volunteering at a local school over the summer, working five days a week.
This commitment is even more inspiring given that Anna, who has cerebral palsy, needs a powered wheelchair to provide her with independent mobility. Her previous power chair, provided through local contacts would break down frequently, often leaving her stuck for several hours until her parents could arrange to pick her up. In March, Priority, working with Newlife funded a new powered wheelchair …
Read all of Anna’s ambition: to be a Schoolteacher
Hannah from Dorking loves cycling, swimming, music and social occasions involving cuddles and attention. Hannah has Cerebral Palsy and is unable to walk, or weight bear but has some use of her arms. Her Cerebral Palsy affects her trunk strength so that the only two activities where she can feel totally free are swimming and cycling.
Hannah already has a tricycle which she received in 2003 and which she absolutely loves but she has now outgrown it and it is also extremely worn on several parts such as the knee supports. Following a major operation in 2005 a trike is more important than ever to Hannah because she …
Read all of Hannah’s getting out and about
Whether you are a disabled person, a family or friend of a disabled person or employed within the social care world, the word ‘personalisation’ has probably started to enter your vocabulary. For those not fortunate enough to have even brushed past this concept here is a story to assist you.
Once upon a time, disabled people lived in a small part of town known as medical model ville. With efforts to cure or keep disabled people away from society, one could say it wasn’t the best part of town. Gradually over time disabled activists and campaigners have spread the good word of social model ville. Here, ramps were invented, friendships forged and careers blossomed. Now, this move isn’t quite the end …
Read all of Personalisation – a happy ever after story
